Saturday, December 12, 2015

Tardive Dyskinesia dystonia - Symptoms from Medications your Doctor will not tell you about

This is a true story about my daughter Justine

Justine age 4
My daughter Justine says: 
"It is a very long list of medications that can cause tardive dyskinesia [TD] and dystonia. People need to be warned! Doctors and psychiatrist don't warn most people of the risks. It's unfortunate that some of the medications I'm on to control the movements, can make TD worse. I'm on Xanax, and Prozac, and Omeprazole.
These are medications that are unlikely to cause tardive dyskinesia and dystonia. 
I refuse to take the Parkinson's drugs,which my doctors keep trying to get me to take. They have horrid side effects beyond tardive dyskinesia and dystonia. 
Botox has helped, but only mildly. I'm not willing to do deep brain stimulation surgery, it means they put electricity in your head with batteries, like a pacemaker except more like electro shock therapy, constantly. It's a permanent implant. 
I hope to get the opportunity to meet and work with that orthodontist in California, that makes special mouth-guards. I've seen on YouTube that people as severe as me get relief as long as they wear the mouth guard. I don't understand how or why it works. 
Most people who develop Tardive dyskinesia and dystonia suffer the rest of their life with uncontrollable movements. It is excruciating. A very small percentage of people, after years, the movements go away, mysteriously."

What is Tardive Dyskinesia dystonia?

My daughter has been disabled by Tardive Dyskinesia and dystonia because her doctors prescribed medication for her that causes this debilitating disability. 
Her form of drug-induced dystonia is described in this paragraph. Her symptoms started out small in one corner of her eye then progressed rapidly in one year. 
Be sure to check this entire page for a comprehensive list of medications that can cause this medical problem.  You will be shocked at the long list of drugs that are STILL being supplied every day to everyone!
Some have been taken off the list such as Reglan which was given to me in 2009 when I was in the hospital for 5 months. 

Justine in 2013

"Tardive dystonia starts insidiously and progresses over months or years, until it becomes static. Dystonia typically presents in a twisting pattern with deviations on multiple anatomical planes. The movements typical of tardive dystonia are generally slower and more sustained than other dyskinesias."
"Symptoms of dystonia can range from very mild to severe. Dystonia can affect different body parts, and often the symptoms of dystonia progress through stages. Some early symptoms include:
  • a "dragging leg"
  • cramping of the foot
  • involuntary pulling of the neck
  • uncontrollable blinking
  • speech difficulties"
Information from:

Justine in 2013

Tardive Dystonia Causes

Tardive dystonia often develops due to the use of certain neuroleptic agents and other antipsychotic medications. These drugs are generally used to treat individuals with mental illnesses such as schizophrenia or bipolar disorder. Tardive dystonia can also develop as a result of the use of certain antidepressants and gastrointestinal agents.
Not everyone who takes one of these medications will develop tardive dystonia, and the scientific community has not definitively determined why some patients develop the condition while others do not. However, patients who undergo long-term treatment with medications that cause tardive dystonia generally experience the condition at higher rates than patients who undergo treatment with the medications for shorter periods of time.
The following medications have been associated with tardive dyskinesia:
  • Acetophenazine (Tindal)
  • Amoxapine (Asendin)
  • Chlorpromazine (Thorazine)
  • Fluphenazine (Permitil, Prolixin)
  • Haloperidol (Haldol)
  • Loxapine (Loxitane, Daxolin)
  • Mesoridazine (Serentil)
  • Metoclopramide (Reglan)
  • Molindone (Lindone, Moban)
  • Perphanzine (Trilafrom, Triavil)
  • Piperacetazine (Quide)
  • Prochlorperazine (Compazine, Combid)
  • Promazine (Sparine)
  • Promethazine (Phenergan)
  • Thiethylperazine (Torecan)
  • Thioridazine (Mellaril)
  • Thiothixene (Navane)
  • Trifluoperazine (Stelazine)
  • Triflupromazine (Vesprin)
  • Trimeprazine (Temaril-P)
  • [Just a partial list]

My daughters video of a Tardive Dyskinesia dystonia storm event that she experiences and what it is like for her without medication.  Video taken December 2015.
She does use expletives and rough language.

Links to information abot Dystonia and Tardive Dyskinesia

More Information:
Drugs belonging to this class of neuroleptics include (trade name listed in parenthesis):
1 Acetohenazine (Tindal)
2 amoxapine (Asendin)
3 chlorpromazine (Thorazine)
4 fluphenazine (Permitil, Prolixin)
5 haloperidol (Haldol)
 6 loxapine (Loxitane, Daxolin)
7 mesoridazine (Serentil)
8 metaclopramide (Reglan) 
9 molinndone (Lindone, Moban)
10 perphanzine (Trilafrom, Triavil)
11 piperacetazine (Quide)
12 prochlorperzine (Compazine, Combid)
13 promazine (Sparine)
14 promethazine (Phenergan)
15 thiethylperazine (Torecan)
16 thioridazine (Mellaril)
17 thiothixene (Navane)
18 trifluoperazine (Stelazine)
19 triflupromazine (Vesprin)
20 trimeprazine (Temaril).


In February 2009, the connection between tardive dyskinesia and certain medications made the news, when the FDA announced that metoclopramide would be required to carry a “black box” label warning of the risk of tardive dyskinesia with long term use. Metoclopramide is an antiemetic prescribed for gastroparesis, severe acid reflux, and other problems; it is sold under the brand names: Reglan, Octamide, and Maxolon. Patients under sixty who use this drug for three months or more run the risk of developing tardive dyskinesia; people age sixty and older are especially vulnerable and may develop tardive dyskinesia after only a month on metoclopramide.
The following overview of drugs which can cause tardive dyskinesia is by no means exhaustive. Other medications not included here can also cause tardive dyskinesia.
Neuroleptics (anti-psychotics) are medicines given for psychiatry disorders; they have proven exceptionally effective for schizophrenia. Unfortunately these wonder drugs come with a price; they can cause tardive dyskinesia. The following classes of medicines are neuroleptics which are known to cause a tardive dyskinesia diagnosis:

• Dibenzodiazepines
• Droperidol (brand name: Isapsine)
• Haloperidol (brand name: Haldol)
• Loxapine (brand names: Daxolin, Loxitane)

• Primozide (brand name: Orap)

• Molindone (brand name: Moban)

• Chlorpromazine (brand name: Thorazine)
• Fluphenazine (brand names: Permitil, Prolixin)
• Mesoridazine (brand name: Serenitil)
• Perphenazine (brand name: Trilafon)
• Thioridazine (brand name: Mellaril)
• Trifluoperazine (brand name: Stelazine)

• Thioxanthene ((brand name: Navane)
The following drugs are called atypical neuroleptics. They are newer than the traditional neuroleptics and they are less likely to cause tardive dyskinesia; however, the atypical neuroleptics are not entirely risk- free. In some cases, people taking atypical neuroleptics have developed tardive dyskinesia.
• Amisulpride (brand name: Solian)
• Olanzapine (brand name: Zyprexa)
• Quetiapine (brand name: Seroquial)
• Resperidone (brand name: Risperdal)

Anti-cholinergics (anti-spasmodics) are class of medications prescribed for respiratory problems such as COPD, bladder control problems, Parkinson’s disease, and other reasons. The following anti-cholinergics have commonly been given to help control some symptoms of Parkinson’s, but these drugs can cause tardive dyskinesia:
• Benzhexol
• Biperiden (brand name: Akineton)
• Ethopropazine
• Orphenadrine (brand names: Norflex, Norgesic, Orphengesic)
• Procylindine

People on the following antidepressants also run the risk of developing tardive dyskinesia, although the risk is lower than with the neuroleptics:
Monoamine oxidase inhibitors (MAOIs)
• Phenelzine (brand name: Nardil)
Selective serotonin reuptake inhibitors (SSRIs)
• Fluoxetine (brand name: Prozac)
• Sertraline (brand name: Zoloft)

(brand name: Desyrel)
Tricyclic antidepressants
• Amitriptyline (brand name: Elavil, Vanatrip)
• Amitriptyline combined with perphenazine (brand name: Triavil)
• Amoxapine (brand name: Asendin)
• Doxepin (brand name: Sinequan)
• Imipramine (brand name: Tofranil)

The antiemetics are given to quell severe nausea and acid reflux. Metoclopramide is used primarily for gastroparesis—a condition in which the stomach does not contract properly, but this powerful drug is also used for severe cases of acid reflux and to prevent aspiration pneumonia. In addition, metoclopramide may given for headaches which are due to a disorder of the cranial blood vessels. The following drugs are antiemetics that can cause tardive dyskinesia:
• Metoclopramide (brand names: Reglan, Maxolon, Octamide)
• Prochlorperazine (brand name: Compazine)
According to the Federal Food and Drug Administration, over 2 million people now take metoclopramide (Reglan, Maxolon, Octamide); the wide-spread use of this medication means that more people are now at risk for drug-induced tardive dyskinesia.
The anxiolytics are given for anxiety disorders. The following anxiolytic has been known to cause tardive dyskinesia:
• Alprazolam (brand name: Xanax)

Antiepileptic Medications
Some drugs give to prevent or reduce epileptic seizures can also cause tardive dyskinesia:
• Carbamazepine (brand names: Atretol, Epitol, Tegretol)
• Ethosuximide (brand name: Zarontin)
• Phenobarbital (brand names: Barbita, Luminal sodium, Solfoton)
• Phenytoin (brand name: Dilantin)

Anti-Parkinson’s Agents
Parkinson’s patients are especially prone to develop tardive dyskinesia and should use caution when taking any medications known to cause tardive dyskinesia; for example, metoclopramide (Reglan, Maxolon, Octamide) should only be prescribed for people with Parkinson’s if the benefits of taking the medication outweigh the risks of developing tardive dyskinesia. Some drugs given for Parkinson’s symptoms can cause tardive dyskinesia:
• Bromocriptine (brand name: Parlodel)
• Levodopa (brand names: Dopar, L-Dopa, Larodopa)
• Levodopa (brand names: (Atamet, Sinemet)

Other Drugs which can cause Tardive Dyskinesia
The mood stabilizer lithium sometimes given for bipolar disorder can cause tardive dyskinesia:
• Lithium (brand names: Cibalith-S, Eskalith, Lithane, Lithobid, Lithotabs, Lithonate)
Dopamine (brand name: Intropin) can cause tardive dyskinesia, but this drug is generally given to people in serious condition in the hospital to strengthen the heart’s pumping action, so the benefits are considered to outweigh the risk; in addition, this medication is less likely to be given long term than some other tardive dyskinesia-inducing medications.

Even the commonly given antihistamines and antihistamines with decongestants can sometimes cause tardive dyskinesia, but this is rare; 
antihistamines given in combination with sympathomimetics can also cause problems.
The anti-malarial drug Chlorquine (brand name: Aralen) can cause tardive dyskinesia.
The estrogens found in oral contraceptives and hormone replacements can also cause tardive dyskinesia, but this is rare.

Ritalin and Ritalin SR

 two controversial drugs given to children for ADHD also can cause tardive dyskinesia. The generic name for these two medications is methylphenidate.

In addition the amphetamine Adderall can cause tardive dyskinesia; so can caffeine in large enough doses.

You are welcomed to pass along this post and photos and the video links. Please help educate the public of the dangers of these medications.
Thank you.
Merry Christmas from Justine and me.

Friday, December 11, 2015

Christmas past – My craft tutorials – Quick and Easy

Links to my Christmas tutorials

Here are some tutorials from some of my Christmas projects that I have made over the years.

Following these first three tutorials that are using felt,and material,will be some of my favorite Christmas projects that I have made over the years. Some quick and easy, some were a little more difficult depending on your ability and expertise.

All the patterns are from Pinterest, or websites listed below, were adapted by me. 

Yo Yo's Christmas Projects

What is a Yo Yo?
A Yo Yo is a cut out a circle of fabric that is gathered together around the edges with thread and pulled tight to make a tight circle.

Using Yo Yos for Holiday Decorations

I have seen Yo Yo's since I was a little kid. I do recall that either I or one of my kids had one of the clowns made from the Yo Yo's.
I have been saving Yo Yo ideas from Pinterest for a year. I have decided to make the Yo Yo projects for Christmas. Some of the Yo Yo projects have “Christmas Colors” and others have colors that my friends and family like.

Yoyo pattern placement for a YoYo wreath. link to FULL tutorial at JAQUO magazine.

 Christmas Crafts – Easy Children’s crafts – age 5 and up – “Sakura” Felt Ornament and Button Snowmen – FREE Patterns

I made my own templates for the Sakura type ornaments
Using a CD for the larger circle, to make it bigger as they used two smaller circles. Bigger circles for little hands. For very small children just use the two larger circles of different colors.

For older kids use one of the smaller circles for the inside and one larger circle for the front and one larger circle for the back.  link to FULL tutorial at JAQUO magazine.

Dozens of Easy Felt Ornaments – FREE Patterns

Dozens and Dozens of Christmas ornaments. I work year round on my projects so that they will be done in plenty of time to ship to family and friends who live out of my state. I never know when I will not be well enough to work some days so I pace myself and give myself at least two or more months to finish projects before the holiday or birthday or whatever occasion the item will be for that person.

More patterns from this Nisse doll below.  link to FULL tutorial at JAQUO magazine.


Christmas past

Plastic Canvas Christmas Projects 

Here are some of the Plastic Canvas Mittens I made - four different designs,

Two different snowflake patterns

Page three of mittensPage two of mittens

Pattern for Mittens

more patterns for mittens

All of the mittens I made

up close 

Patterns came from Pinterest.  I have saved hundreds of plastic canvas patterns easy and difficult at my Pinterest account:
Everything you can imagine in the design has been made into a pattern for plastic canvas construction.

Tiny Christmas trees

Tiny Christmas trees  were made from the following pattern.
I used this pattern for the two tone trees. I will use the same pattern to make the two tone hearts next spring!

to make the colored lights on the tree and make those stitches first then added the dark green.  you can stitch me safety pin on the back to make this a nice jewelry piece for your coat or sweater. 

Small Wreaths with Holly leaves and Bows

All plastic canvas that I work on is size 7 or seven holes to the inch

These  Wreaths were made from the following patterns.

Bows and holly
Large wreath pattern

Very quick and easy to make. You use the yarn of the same color to attach the bows and Holly leaves to the wreaths. 

Wreath pattern with Bow and Mr. and Mrs. Santa

Four snow people screen

I have made three of these snow people screens from the following pattern.

This pattern comes from
All you need to do is give them your e-mail address. Then you can copy all the patterns you want for free. 

Photo from Free patterns

Page two of the Happy Snow couples

Two of the three different snow people screens I made.

Red Nose Pom Pom Reindeer

Red Nose Magnet

Link for this pattern.

photo of completed Reindeer face Christmas ornament.

Three dimensional more complicated reindeer pattern. I did not have a copy of this pattern with me. It was pretty difficult to make, two pieces of the reindeer body attached with a strip of plastic canvas attached from under the chin down under the body then up to the tail. it was hard to attach that piece.  

More mittens and simple candy cane

the mittens pattern is a small mitten

this pattern includes the mittens, the tiny tree, and a snowman.

Candy cane pattern for larger candy cane

completed candy canes patterns  from

Candy cane on simple basket

Easy basket made from a flat sheet of green plastic canvas attached is a cylinder with a circle at the bottom attached. The other designs were completed before the circle was added to the bottom. The other parts of the basket in these photos.

The handle was designed to look like little Christmas trees added after everything was completed.

Pattern basic for a basket use this as a guide for a basket and decorate with your stitches of your own design this one happens to be for Halloween. I used these measurements for basic small basket. A larger basket the size I made requires a full sheet of plastic canvas from the cylinder part of the basket. see below for photo instructions for the larger basket.

basic larger basket from  this one was from the kitchen section of the plastic canvas patterns.

A full sheet of plastic canvas is about 10 - 1/2 inches by 13 -1/2 inches.  Standard size canvas is size 7 which is seven holes per inch. The larger basket is 136 holes which equals about 9 inches in diameter. The pattern calls for a premade 9inch plastic canvas Circle.

Holly  leaves and Berry

Photo of me working on the Holly leaves.  I usually have to take off my glasses when I'm sewing stitches for all my craft projects. 

pattern for different holly leaves

I made this pattern to make each holly leaf look different.

Holly berries pattern idea I used, this one also as a soldier.

I had some variegated green and completed stitches in various spots, added more stitches in other colors green yard that I had to give this look to the holly leaves. I get the same for the Berry, as I used two or three different shades of red yard.

Simple stockings Pattern

stockings pages

Make one decorated plastic canvas stocking and one blank from the pattern below

the long strip is to connect to stockings together.

My completed projects

I liked the idea of the pattern, but wanted something slightly different. I wanted the reindeer, candle, the word capital NOEL.  Also I didn't make them as holders as pur instructions.  I just wanted ornaments.

all six ornaments.

Christmas train ornament

My best friend's husband was addicted to trains.over the years I have made him and he trains. Sadly Thomas the passed away in April 2015. I made these trains for him for Christmas do this and 2015 so he didn't get to enjoy themfor one Christmas.

I made them slightly different than the pattern I also made the  slightly different train engineer.   I used buttons the wheels. More patterns below.

some patterns

Engine                                               boxcar

Caboose                                           Coal car

more patterns

Easy felt snowmen

Using red,green and white felt and simple small buttons, black and red embroidery floss for the arms knows and eyes.

I embroidered on each of the edges. 

from Pinterest I get the idea.

My projects with tiny white ric - rack, without the arms

                                                                                      close up.

Very simple Tomte or Nisse Dolls

The photo is not as good as I would like it to be. I only made four of these dolls.  The legs were a bit hard to stuff bit the rest was pretty simple. Here are the patterns.  Embroider the faces first before sewing the faces to the hat and body.

The pages from this book are large like 7 X 9 inches. 

Pattern from the Book Scandinavian Stitches: 21 Playful Projects with Seasonal Flair Paperback – November 16, 2010  by Kajsa Wikman

Potpourri filled boxes

You will find a lot of fun patterns for plastic canvas at this website.
Pattern for potpourri boxes here

Easy  and quick idea, works up fast because you do not work all of the plastic canvas.

Using plastic canvas in red, green and white or clear I cut squares of plastic canvas. I saw these box designs for Potpourii Christmas ornaments and I wanted to do something different with them. The pattern does have you fill the boxes with Potpourii, but you sew them closed. I made it so you could open the box and I placed mint that I grew in my garden in a bag I sewed of white organza material. Then when the fragrance is all diffused you can fill the bag again with something else. They came out really cute!